This whole journey began over three years ago when, by sheer accident, they discovered cancer in my right breast. It never showed in any imaging. They did a lumpectomy to remove what they thought was a benign papilloma in one of the ducts--it was, indeed, benign--and discovered carcinoma. After three surgeries in two months, I ended up minus that breast and all its lymph glands and counting myself lucky, since the breast had been riddled with carcinomas that didn't show up in any diagnostic imaging. We had caught it just before it began moving out of the breast.
The mastectomy left me with lymphedema in my right arm, a condition that can't be cured but must be managed for the rest of my life. And my fierce, little oncologist who sees herself in a never-ending battle with cancer (and whom I love and respect) put me on daily meds and an every-six-months infusion to try to prevent the same kind of hidden cancer from growing in my left breast. The side effects of these however, exacerbated my lupus and fibromyalgia, leaving me in massive flare continually. The fatigue and weakness, joint pain, and muscle pain and weakness decreased my mobility more and more as time passed. So I finally decided that I needed to stop at three years, even though she had wanted me to stay on this regimen for at least five years.
So I was nervous when I went in for my six-months treatment and told her I didn't want the chemo and had already stopped taking the Aromasin. I explained that I saw it as a quality-of-life decision--and to my great relief, she agreed with me. I didn't want to anger her. This woman, my wonderful female surgeon, and the rest of my medical team probably saved my life, and I'm eternally grateful to them. I just didn't want to spend any more years as a semi-invalid.
So, as I finally put cancer behind me, I want to post this poem I wrote one day after my time in the chemo clinic. I met so many people who were fighting hard and sometimes pretty hopeless battles with such courage and dignity. I always came out of my time in the chemo chair--which was nowhere as awful as what some of them endured each time--with renewed respect for those other patients and for the nurses, who were always upbeat, kind, and truly caring.
IN
THE CHEMO CLINIC
In
the chemo clinic today cushy chairs raise us above
the
ground like children with feet dangling until the nurses
put
us in recline with our feet out in front
of
us and our heads tilted back fluorescent colored
bags
hang from rolling chrome towers a different color
for
each of us we’re having a real party here this cold rainy
afternoon
colorful plastic lines drip the bright
liquids
into us every one to her own poison it’s just us
girls
here today no guys this time gaunt gray cheeked
white
haired if we had any left girls except
a
few of us who have swelled like helium balloons
at
home and of course the nurses so good at finding
collapsed
veins and installing new ports we’re trading
jokes
cemetery humor and laughing even if some eyes
look
scared or tired of the fight no one willing to be
the
party pooper though all too familiar with the job
those
bright colored chemicals leaving the bags
for
our bodies do on the gut everyone laughing and praying
let
me keep it down let me make it out and home
before
it hits let me make it let me not die and leave
the
drab dripping trees that I know will put out new shoots
green
and lacy in the spring let me live to see them
let
me be one of the ones who beats this
let
me make it please let me make it
©Linda
Rodriguez 2016
There are no 'correct' decisions, whatever you believe is right for you is a good decision. I stopped after several chemo's, ended up missing the last two. (Breast cancer too). That was in 2005. I did take Aromasin for seven years after that though. My daughter has Fibro so I don't know how you coped with the additional chemo. Sending healing energy to you. Enjoy every day.
ReplyDeleteYour poem is wonderful. It takes me inside your heart. I am so glad you get to stop the meds and get back to feeling better.
ReplyDeleteMona, seven years is a LONG time on that stuff. Originally, my oncologist said 5 years, but this past year, she spoke several times about maybe 10. I just had to stop. I didn't want to be hobbled by all that pain, fatigue and weakness any longer.
ReplyDeleteSally, thanks. We need to get together for lunch soon--or once i move into the new place at the beginning of October.
ReplyDeleteI love that you feel free to make that decision, that you are supported, and that you are not argued with. Steve is still dealing with his and has, so far, responded to a new type of treatment. I am praying for you and Steve, as well as other friends and family dealing with this disease, treatment, hope, and acceptance. You have helped me since the return of his cancer, and I hope to offer you support even if we never meet in person. I love you. R.
ReplyDeleteStrong poetry, strong woman.
ReplyDeleteDearest Reine, I so hope that Steve's body will keep responding well to the new treatment, so well that he can one day cease treatments, as well. You and he are, as always, in my heart and prayers. I've missed not keeping up with you while I've been off FB so much, but hope to get all caught up once we're through this ordeal and settled in our new house.
ReplyDeleteThank you, Debra. You are one of my favorite strong woman friends.
ReplyDelete